Episode 5: Rethinking Rare – The Future
of Rare Disease Research
Join us for this week’s new episode as Tania Simoncelli and Nasha Fitter come together to discuss how rare disease patient advocacy has transformed over time and how the biopharmaceutical industry should adapt to better meet the needs of today’s patients.
They dive deeper into the evolution of rare disease patient advocacy groups, why industry must move beyond the hyper focus on “blockbuster drugs” to make progress in rare disease research, and how advancements in rare disease treatments can benefit the clinical research ecosystem for all.
This episode is available to stream on Spotify, Apple Podcasts, and YouTube.